Wednesday, May 23, 2012

Beyond what you see on the outside



Just because Type 1 gamers don’t look sick it doesn’t mean that they don’t deserve a cure.

As we embark on another year of JDRF fundraising through the Walk to Cure Type 1 Diabetes as well as the Mike’s Bike Shop Cyclebetes 200 ride to cure Type 1 Diabetes, our challenge is once again trying to compete with all of the other worthwhile causes.

There are so many other diseases out there with their images of thin, debilitated victims. Personally, I often think that it seems easier for them to touch our hearts and for us to reach into our pockets to support the search for better treatments and a cure for their ailment. Humans are likely more apt to help those that look sick, the sicker the better. It’s just the way it is.

Type 1 gamers have 2 major things against them in regards to society’s perception and willingness to support the search for a cure:

1 – Stereotypes about “Diabetes” as a whole meaning not understanding the differences between Type 1 and Type 2 which is often associated with phrases like “Can be reversed” or “Can be controlled with diet” or “Caused by poor lifestyle choices”. Type 1 Diabetes is in no way caused by lifestyle. Type 1 Diabetes cannot be prevented. Type 1 Diabetes usually strikes innocent children, often with no family history of the disease.

2 – Before complications arise, Type 1 gamers generally look very, very healthy on the outside. They run, they play, they work and often thrive. Aside from Adele’s insulin pump clipped to her belt, infusion set (that is usually hidden under her clothes) and calloused finger tips she looks as healthy as all of her non-Diabetic friends.

Type 1 gaming is like living a double life. There is not one aspect of our life that isn’t affected by it. It’s always there and must be dealt with 24/7 without any exceptions yet we don’t talk about it all of the time. Type 1 gaming always seems to take place in the background, behind closed doors. Society is generally frightened by the sight of blood or needles, so Type 1 gamers tend to test and inject insulin in private.

Even if the pain and suffering isn’t always apparent on the outside, it doesn’t mean that it doesn’t exist. Type 1 gamers deserve better. We deserve a cure.

2 comments:

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James said...

Hi – Will you please post a link to your important Blog at The Type 1 Diabetes Community at vorts.com? Our members will really appreciate it.
Members include: Those living with Type 1 Diabetes, their families, friends, experts, caregivers and support groups.
It's easy to do, just cut and paste the link and it automatically links back to your website. You can also add Articles, Photos, and Videos if you like.
Email me if you need any help or would like me to do it for you. I hope you consider sharing with us.
The Type 1 Diabetes Community: http://www.vorts.com/type_1_diabetes/
Thanks,
James Kaufman, Editor