I
really don’t think that I’ll ever be done blogging (or writing). Yes, it does require time, which isn’t always
something that most have plenty of, but it can also be a bit more complicated
than that…
Adele
is in her senior year of junior high and is now online more than I am. Like most teenagers, social media and the
internet are a big part of her life now.
Most of my blog posts are quite raw, tell it like it is, don’t hold
anything back writing and for this reason I would not want Adele to read them
and misinterpret the content and feel bad in any way. I really don’t know if Adele has ever spent
time reading my blog, but it being there on the web, it is always a possibility.
Adele,
if you are reading this please know that we LOVE you very much and that we will
ALWAYS be there to support you in every way that we can. Type 1 gaming is a lot of work and very
frustrating sometimes but none of this is your fault whatsoever. You have often asked me why your name came up
in the Type 1 lottery, and like always, I cannot give you an answer other than
because you are strong enough to handle it.
Life often gives us challenges and Type 1 gaming is just one of
them. It’s not personal. It’s not your fault. You didn’t do anything to cause it. You are not less because of it. It just is.
The
best things in life require the most work and also force you to step out of
your comfort zone. The sweetest bike
rides require work dedicated to bike maintenance and setup, regular saddle time
to gain fitness and Mother Nature’s cooperation with perfect weather
conditions. Relationships require lots
of time and attention as well as inevitable rough times working through many
challenges and problems. A close family unit
requires consciously making time for each other, compromise and supporting each
other through thick and thin. But this discomfort
and hard work are also the very reason WHY these things are the very best that
life has to offer. We never appreciate
things that come easy… Type 1 gaming
doesn’t come easy and we appreciate and love you that much more because of it.
The
day of your diagnosis, I promised myself to do every single thing in my power
to help, support and ensure your best care possible. I never, ever regret or question all that I
do for your Type 1 Diabetes and would do it all over again in a millisecond. No questions asked. You are worth every single second of effort
that we put into your care.
As
Type 1 gamers, I believe that we have a responsibility to be part of the movement
towards new Type 1 treatments and the quest for the cure. This includes spreading much needed awareness
and supporting research through JDRF. It
is our responsibility to speak up, to tell it like it really is. Type 1 gaming mostly happens behind closed
doors when no one else is looking or listening which is why I created this
blog, to open this door even just a tiny bit in order to give outsiders a
glimpse of what it’s like on the inside.
We owe this to ourselves and to all other Type 1 gamers. We’re not complaining. We’re speaking up.
You’re
you and you’re perfect just the way that you are. You have all the tools within you to
strive. You are and always will be enough. I wouldn’t change a single thing about you
Adele… Well, I’d take away your Diabetes
if I could. But, I think you already knew
that.
I
love you Adele
Papa
3 comments:
This is so sweet. I hope she does read it one day and know exactly how special she is.
Really enjoyed reading this post to your daughter, and love the line: "You're perfect the way you are." What a sweet letter-blog (yes, it's a thing) and she's so lucky to have you on her team! Thanks for sharing this with all of us.
A great read, Mike! It is strange how sometimes life will throw you a curveball, and one can step up and hit it out of the park. You have turned your Type 1 experience into something that makes your family so much stronger than so many others. Keep riding, keep writing and but most of all, keep sharing!
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