Overflowing gratitude

Photo credit Luc Arseneau

 
It was still only early November, but it felt like the dead of winter.  Days were getting shorter and temps had dropped drastically, the white snow-covered landscape and the white salt-stained streets made it feel more like the cold harsh days of January.  After close to a week in the hospital, we were all very tired and eager to go home and start this new life.  We didn’t really feel ready to leave yet and play this Type 1 game on our own.  We were still very dependent on the hospital staff since there was just so much information that we were still trying to absorb since the diagnosis.  But we were homesick and wanted out.  The only thing that we needed to do in order to be released was to give Adele her insulin injection.  The nurses wouldn’t be home with us and knowing that this was the deal for the “rest of Adele’s life” I figured that I just needed to man-up and get used to stabbing my 2 year old baby with a needle since we were going to have to do it many times each and every day from now on even if it made me nauseous just thinking about it.

We needed at least one person to hold Adele down while the other did the injection.  Even if it was close to 16 years ago, I still vividly remember the first injection that I gave her, trying so desperately to be gentle, all the while noticing that I needed to push harder and harder on the damn needle before it finally pierced through my baby’s skin.  It’s like her skin was resisting the injection as much as I was.  The moment felt like an eternity.  I felt like puking and crying at the same time but I just stuffed it all up inside and did what I had to do.  I just couldn’t accept that this was going to be it for the rest of her life…  And that’s when I promised that I would do whatever I could to try to fix this.  I would do whatever I could to try to fix this for Adele.  I would do whatever I could to try to fix this for the family that is going through the exact same thing in a hospital somewhere right now.  I didn’t know it then, but looking back that was the moment that the Cyclebetes seed was planted.

Photo credit Luc Arseneau

A whole lot has changed since that day in November.  My body is certainly much more weathered and worn out after all these years of playing this Type 1 game, but then again I also feel a bit wiser because of it.  Adele still hates the needles even after thousands of injections since her diagnosis in 2002.  And I am still keeping my promise to do what I can to try to fix this.  My pace has certainly slowed down but progress is progress and I still feel like we are getting closer to a Type 1 cure and better treatments with JDRF funded research projects like glucose-responsive insulin, the artificial pancreas, islet cell encapsulation and so many others.  The long-term outcome of a Type 1 Diabetes diagnosis has never looked so good. 

Photo credit Luc Arseneau

Deep down I believe that humans all long to make a difference.  We are all seeking purpose.  There is an inherent part of us that wants to and needs to help others.  How do we change the world?  We change the world by doing many seemingly insignificant good little things every single day in our little part of the world.  It all adds up in the end.  And the sum is a life lived with meaning.  That’s what can change the world.  Cultivate the compassion in you and let it seep into everything that you do.  Do your little part and leave a legacy.

Photo credit Sarah Lord

I am very happy to report that the 11^th annual Mike’s Bike Shop Cyclebetes ride to cure Type 1 Diabetes raised $20,000 for JDRF!  That brings our total to over $220,000 raised since 2007!  Looking at these numbers I realize that this isn’t a small feat for such a small bunch of cyclists; possibly even more impressive is the fact that next year will be our 12^th year.  So many events like this die after a few years.  Like the 24-7, no vacations ever work required to play the Type 1 game, we must persist.  Insulin is not a cure.  It is only life-support.  We deserve better.  We deserve a cure.

Photo credit Luc Arseneau

The Mike’s Bike Shop Cyclebetes ride to cure Type 1 Diabetes cause is and will always be mine but the event itself now really belongs to our main sponsor, Mike’s Bike Shop.  Rick Snyder, thank you so much for stepping up and running with the event.  Your generosity and undying support continue to amaze me each and every year.  The MBS Cyclebetes ride would simply not exist, especially after 11 years, without you.  Thank you also to the rest of the organizing committee who give so much of their time and energy throughout the year.  Thank you so very much Pablo Vergara and Luc Belliveau for all that you do for Cyclebetes and JDRF.  Thank you Gilles Gallant, NB and PEI JDRF engagement coordinator for all your help which goes beyond your expected role at JDRF.  The MBS Cyclebetes ride wouldn’t exist without your involvement.  We do make a very good team.  I am so very grateful to have people like you in my life that I can call amazing friends.  Thank you.

Photo credit Luc Arseneau

Thank you Brett Wilson, JDRF kids ambassador and his parents Carrie and Jason for accepting to make an appearance at the ride just in time for the group photo.  Thank you Carrie, as well as Brett, for your speech before the afternoon group left for their ride.  You embody the innocent faces behind Type 1 Diabetes and reminded everyone what the ride was really about.  Thank you.

Photo credit Luc Arseneau

Thank you all that rode and fundraised.  I am always floored by your generosity and willingness to help get us closer to a cure.  A special thank you to the riders who really went above and beyond, putting in the extra effort in order to reach and even surpass their lofty fundraising goals, especially those with no ties to Type 1 Diabetes.  I hope that you all enjoyed the ride and event!  Thank you.

Photo credit Luc Arseneau

Thank you Luc Arseneau for the awesome event photos.  I know that was a HUGE undertaking with an incredible amount of effort involved.  Thank you so much for stepping up to the challenge and delivering with an amazing collection of shots that will forever remind us of such an awesome day.

Photo credit Luc Arseneau

Thank you to all of our sponsors:  Scotiabank, Sobey’s in Dieppe, MacDonald Buick GMC, Giant bikes / Guy Pellerin of Pellerin Sports, City of Dieppe, Cavok Brewing Co., Cape Bald Packers, Terry Tomlin of Tomlin Sports Marketing, Starbucks, Kevin Noiles of Lambert, Pat Bolduc of Big Ring Sports, Nomad Supply Co.,  Trek Bicycles / Bontrager, Mexicali Rosa’s, Moxie’s Bar and Grill, Dooly’s, Dieppe Imaging,  DNA Swag Inc., Dieppe IGA / Coop, Long and McQuade, Vins Dandurand, Chris Mitton and Jim Currie.  Thank you.

Photo credit Luc Arseneau

And last but certainly not least, thank you to all of our other dedicated volunteers:  Jeff Currie, Bill Goobie, Martin Pelletier, Charles Cormier, Diane Duguay, Janice Evers, Gerry Allain, Elmer Wade, Pete Cormier, Brian Bourgeois and Dyane, Steve Kikkert, Serge Noel, Rhonda Currie, Caroline Belliveau, Tania Morais, Rachel Parkins and Michele LeBlanc.  Events like these can’t happen without help from people like you.  Thank you. 

If I have forgotten anyone, I apologize and want to thank you as well.

Photo credit Luc Arseneau

We are already starting to plan the 12^th edition of Mike’s Bike Shop Cyclebetes.  Mark the date: Saturday, September 7^th, 2019.  I really hope that you can join us !

Photo credit Luc Arseneau

All online fundraising pages will still work until the end of the year so you can still donate here...  2018 Mike’s Bike Shop Cyclebetes Ride to Cure Type 1 Diabetes.

I am forever humbled by your love and support…

Peace

Mike

Seven hundred and thirty days

Today is my two year concussion anniversary.  As I brushed myself off after that crash, I knew that I had gone down pretty hard, but still really thought that I was OK since my legs and arms still seemed to work and didn’t hurt.  But it turns out that it was my head that broke the fall and now, two years later I’m still talking about it.  Seven hundred and thirty days and there has not been a single one of those days that I did not think about it.  Actually, I still think about it many times every single day.  On the outside it seems like I’m 100% recovered but I know that I still am not and I won’t be until I have learned what it is trying to teach me.  People don’t realize how much it has changed me.  It has honestly made me re-think every single thing.  Allowing myself to be forged into the new me has been quite painful at times.  Wisdom is so very expensive.

I still have a hard time looking at this picture.  It was taken the day after my crash.  You can see the imprint that the helmet made into my head.  I have a hard time looking at the picture because it is an explicit reminder of all that I have gone through since then...

The truth is that if we live long enough we eventually all break.  It’s just how life works.  That’s how we grow.  I believe that our pain always has a purpose.  My brain injury has made me feel so very vulnerable.  Breaking is an invitation for you to become real, showing us that we are so much more than a physical entity.  The breakdown of our physical bodies teaches us about impermanence, that our experiences in this body and place are but a temporary illusion.  

Through this process, I have lost the drive to push myself.  I don’t have the energy but I also don’t see the point anymore.  Society’s belief that faster and more efficient is always better would lead you to believe that this is a bad thing but most days I now feel like it isn’t.  The best that life has to offer is in the fine details, the small and seemingly insignificant stuff that we mostly overlook.  But this is also the stuff that we need to be still enough to notice.  Systematic rushing through life is a good way to accomplish a whole lots of things on your to-do list, but true happiness isn’t in doing alone but rather in being, mindfully paying attention, at a peaceful slow pace.  Happiness can never be rushed.  It is quiet and soft.

Bike racing saved my life, but then it tried to kill me.  Competitive sports are good like that.  They breed discipline, give you structure, purpose, a sense of belonging, connect you to your tribe but they can also be used to numb the pain.  This can be a good thing, but it’s only a temporary solution to get you through the tougher patches.  Like pain killers, you can’t keep taking them forever. They’re only a temporary solution, a crutch, to help make the acute pain phase bearable.  You have to know when to stop.  I didn’t know when to stop so the universe took matters into its own hands and made the decision for me.

Constantly being busy is the new normal.  It’s the new badge of honor.  Busy often makes us feel important, that we’re getting shit done, that we’re moving forward.  The hierarchical structure of our corporate-driven North American society wants you to be busy.  Busy makes you the perfect member of its work force.  Society also wants you to be a good consumer, to strive for excellence in getting results in order for our economy to grow and thrive.  Because of this, that’s what is taught by our school system.  How to be happy isn’t on the curriculum.  We have to learn that on our own.  

 

I used to think that self-help books were a waste of time, that they just talked about how to live better, how to be more efficient and organized, how to set better goals; basically how to be what society wants you to be – busy getting a whole lot of shit done.  I figured that I already knew how to do most of this and that my problem was that I simply didn’t have the desire or motivation to put it all into practice.  Or maybe deep-down I knew that efficiency and simply doing more wasn’t the answer?

   

Then, around 2010, I picked up a book that my wife had bought called “A New Earth” by Eckhart Tolle.  The book was on her night table for at least a few months before I picked it up and started to skim through it.  What attracted me to the book was the sentence “Awakening to Your Life’s Purpose” on the cover.   I was suffering from caregiver’s burnout at the time playing the Type 1 game and thought to myself that there had to be more to our life than this.  Unconsciously, I was constantly looking forward, working towards something better, an end, a future salvation, but I had finally come to a point where I realized that this was it; that it wasn’t going to get any better than this.  If anything was going to change, I needed to change.  I needed to find some meaning in playing the Type 1 game.  As I started reading the book, I didn’t understand most of it.  It was like it was written in another language.  And it certainly wasn’t something that I already knew like I had previously believed.  But there were a few passages that simply blew me away.  I didn’t understand why no one had ever told me these things, these universal truths in all of my schooling.  I was blown away simply because these passages just made so much sense.  In so many ways I would say that picking up this book saved my life.  And I also believe that it saved my marriage.  I know that this may sound cliché, but it is how I truly feel.

All self-help books really fall into one of two categories.  The books in the first category are those that promote exterior growth like how to accomplish more in your day or how to better manage your time and energy.  Other books in this category teach you how to be better at business, how to be more successful on the outside.  The second category are made up of the books that talk about inner growth, the truth of who we really are and that there is nothing that we can accomplish on the outside that will help us find happiness that we all long for.  This category teaches us that nothing outside of us can fill our inner void.  “A New Earth” by Eckhart Tolle definitely falls into the second category.  I have no interest whatsoever in books in the first category, but I am and will always be a student drawn to books in the second category.

Another book that I have skimmed through quickly but have never completely read is “The Secret” by Rhonda Byrne.  I’m not really sure which category it falls into?  My wife had picked it up but I must admit that I was curious to see what it was all about.  I initially thought that it was just a bunch of marketing hype, a written scheme that connects with our inner fear of not being enough because we don’t have or haven’t done enough yet.  And in many ways it is just that, especially with the Hollywoodized movie version.  For this reason, I had basically put it in the first category.  But the more that I think about it there is some truth to the “Law of Attraction”.  After reading “A New Earth” I began looking for more books with the same message; and the more that I read, the more that I craved the peacefulness and serenity of a slower life pace which lead me to yoga and meditation.   But I always struggled with it.  I struggled to make the time for stillness.  I struggled because I was so used to living a fast-paced, adrenaline-fueled life, racing through checking off items on my to-do list.  Then in a split second the universe took over as my hand slipped off the handlebars when my front wheel hit a root sending me over the bars and landing on my head two years ago today.  From that point on living a slower pace life, living mindfully wasn’t a choice anymore.  This “Law of Attraction” had given me exactly what I asked for.  Thinking about that blows me away.  I believe that there is really so such thing as a coincidence. 

There is also a lot of crappy advice being preached by the self-help industry.  One of these lies is “just be positive”.  So many books have been written on the premise that you can mold your life the way that you like simply by adopting a positive mindset.  If I’m honest with myself, as much as it seems like a good approach to getting what you want in life, I see it as hypocritical bullshit.  Positive thinking really just keeps you in denial.  It prevents you from seeing the whole picture.  Looking at a situation from only one side means that you’re missing information.  Not focusing on the elephant in a room doesn’t make the elephant disappear.  It only makes it scarier.  The whole truth hurts sometimes but I believe that it needs to be told. The “It’s all good” saying is another lie that positive people, the eternal optimists often use.  The good and the bad, even if they are opposites are still interconnected.  One cannot exist without the other.  It’s the contrast between the two that give each its meaning.  Type 1 Diabetes isn’t all good.  It can be a good teacher but it also sucks and has certainly had a major negative effect on my family’s physical health.  My concussion isn’t all good either.  It made me feel so very depressed and disconnected.  These truths need to be acknowledged if I want to move forward.  Honesty is always better than positivity.  

For me “gratefulness” seems like a much better approach to peace and happiness.  It doesn’t seem as one-sided for some reason.  I’m grateful that insulin exists to keep Adele alive and that we can afford it.  I’m grateful that my concussion symptoms are slowly getting better and that it has been a catalyst for my continued healing.  I am grateful for all the good that I have in my life even if there are still some seriously difficult moments that surface every once in a while.  

It’s never all good but there is some good in everything even if it may be hard to see at first.  We just need to be still long enough to notice…

Contemplating our impermanence

An evening last week I biked out to what can best be described as the small wooden pavilion on the Riverview side of the Petticodiac river adjacent to Bore View Park.  I was happy to be the only one there when I arrived since I was really craving some alone time.  It was a warm windy evening that finally felt like summer.  I took my helmet off and stood on the side of the pavilion looking at the Moncton side.  I could see people on the trail on the other side.  They seemed so close but still far enough that they wouldn’t recognize me even if they were watching.  I meditated for a while then just stood there and paid attention to the feeling of the warm breeze on my skin.  It felt good.  The solitude and stillness made me feel a strong sense of peace.

Riding there, I could feel that my focus was off.  It’s been like that off and on since the concussion, but mostly on, especially when I’m doing something that involves movement and when I get tired.  I felt pretty bummed out that my brain just can’t go as fast as the rest of my body anymore.  It’s a feeling of disconnection, a foggy, dream-like state that requires me to concentrate so much harder but still leaves me feeling like I’m not interacting directly with my physical surroundings.  In so many ways, I feel like I’m no longer part of this physical world when I feel like this.  I kindof feel half-dead.

Buddhists regularly meditate on death.  Since it’s a sure thing, why not get comfortable with it?  This really makes sense to me.  Becoming at ease with our mortality is how we become brave and free.  As I stood on the side of the pavilion, feeling so very disconnected from the world around me, looking at the city from the outside, on the other side of the river meditating, I thought about my mortality.  I thought about how I felt like I was having an out-of-body experience, looking down at the world from above in this very moment.  I thought about the intense peace that I was feeling.  And then this intense peace suddenly scared the shit out of me.  The fear that I was feeling wasn’t a fear of dying, but rather a fear of not being afraid of dying.  I still have many fears.  I am always afraid of leaving my loved ones and suffering before I die and I am always terrified of hitting my head again every single minute of every day, but in that specific moment I wasn’t afraid of death.  Maybe a certain fear of death is necessary to keep us alive?

Following the recent deaths of Kate Spade and Anthony Bourdain from suicide there is a shit load of talk on social media and the rest of the internet about depression and mental illness.  Depression, like Type 1 Diabetes and Post-Concussion Syndrome, is invisible.  With celebrities, we build them up as being inhuman.  Not that they are more important than the many other non-celebrities that die from suicide each and every day but we tend to look at them differently.  We have been brainwashed to believe that if we just had enough money and success that our lives would finally be perfect, that we would finally be happy.  Both of these celebrities had achieved this and even more.  Their deaths prove to us that external abundance can never fill our inner void.  And that really shakes us to our core because it really goes against what society has taught us.  The thing is that society doesn’t give a shit about you and your happiness.  It just wants you to work hard and spend lots of money to make the economy thrive.  And it wants you to do this without questioning why.

Premature death seems unfair to us since we’ve been told that we deserve more.  I’m not really sure why I chose the word “premature” here because is there really an age when we are expected to die?  Maybe that age is the average life expectancy?  Unconsciously we all figure we’ve at least got that much time, even longer, as long as we follow the guidelines that our medical community has established.

With suicide there is underlying belief that it is a choice and that it could have been prevented.  Maybe in some cases things can get better in the end with proper treatment?  Some do manage to survive severe suicidal depression.  What do we have if not at least a bit of hope? 

I’ve never been suicidal.  The year after my concussion, I can say that I felt quite depressed and didn’t really want to continue living with the extreme physical feelings of disconnection that I was constantly feeling at the time but I can’t say that I was planning ways to end my life.  My brain was (as still is to a certain extent) physically broken and this had a very big effect on my quality of life which caused my depression.  Like all of our other organs, our brains can become broken beyond repair, caused by both physical and emotional trauma, and the result is terminal depression ending in death from the disease called suicide.  Just like dying from heart failure, kidney failure or liver failure, I see suicide as dying from brain failure.

Kate Spade and Anthony Bourdain were very smart and I’m sure that they knew about Helplines that they could have called in order to seek help, but they didn’t reach out.  It was too late.  It was far beyond a call for help.  Their brains were broken beyond repair.  They died from brain failure.

Openly talking about it is a start but in the end I think we’re all to blame for the rise in mental illness.  We have created a society based on competition and elitism where we celebrate and adore the best, the winners.  We all get caught up in this spell of losing ourselves in working towards reaching the top, seeking excellence.  But in order for someone to win, everyone else has to lose.  By design, this system will always breed unhappiness, a feeling of not quite measuring up, of never being enough.  Even for those who do manage to reach the top, they know deep-down that everyone else is working relentlessly to bring them down, to take their place on the top step.  It is as stressful, maybe even more stressful, to stay on top of the power pyramid as it is to climb up it.  

Standing on the side of the pavilion contemplating my mortality I felt alive again.  Just like Type 1 gaming being a constant reminder of the fragility of life as we live with every single insulin injection avoiding a certain death, happiness would be meaningless without suffering.  It may just be a matter of becoming still enough every once in a while to remind us of this truth.